Never Stay Quiet Video Series

Three words, that’s all it has taken to affect so many peoples lives.  We’ve received emails, gotten phone calls and talked to many IIF followers that have thanked us for our slogan and told us how it has changed their outlook towards their IBD or ostomy.  Never Stay Quiet is a short but powerful message that connects with so many patients.

Many IBD and ostomy patients suffer in silence for too long.  Society tells us not to share what goes on in the bathroom with others.  So patients suffer alone and don’t talk about their Crohn’s disease, ulcerative colitis or ostomy.  This leads to many symptoms worsening, depression and more.  So many of the symptoms and situations that go along with IBD and ostomies are never discussed and they need to be in order to raise awareness.  This is why we’re starting the Never Stay Quiet video series.

The IIF is putting together videos of those who would like to share their IBD and/or ostomy story.  We encourage you to share your story with us.  If you’d like to share your story, we will send you a Never Stay Quiet awareness band.

John Egan Never Stays Quiet About His Ulcerative Colitis and J-Pouch

Sara Ringer of Inflamed and Untamed Never Stays Quiet About Her IBD and J-Pouch

Bob Baker Never Stays Quiet About His IBD and Ostomy


What we’d like for you to share with us:

  • What is your conditions: Crohn’s disease, ulcerative colitis or ostomy?
  • How long have you had the disease?
  • What has been the most difficult situation to deal with?
  • How have you dealt with having an IBD and/or ostomy?
  • What have you done to overcome your IBD and/or ostomy?
  • What do the words Never Stay Quiet mean to you as an IBD and/or ostomy patient?

Below you can send us your information and we’ll contact you about sharing your story and video with the IIF.

We look forward to sharing as many stories as possible to raise awareness and make sure that every IBD or ostomy patient knows that they should Never Stay Quiet!