As with many things in life, I expected ebbs and flows with my 70.3 for IBD half Ironman training. It wasn’t likely that I’d have a smooth 8+ months without any health problems. It would have been nice, of course, but it didn’t happens, which is why I’m trying to navigate a little bump in the road, physically and mentally, right now.
This is particularly tough because of how GREAT May was. Over the long journey with my Crohn’s disease, I’ve had to build myself back up to a normal weight and strength but this time was different than the past. My goal was to reach 160 pounds around the end of April, which I succeeded in doing. That was the first time in a long time that I reached that weight. Below are my training numbers from my training in May.
I set a second goal of 165 lbs. for the middle of May, while simultaneously building my cardio strength as well. I hit this goal right on time. By the end of May, I felt stronger than I ever had. I was cycling through my hometown with ease and running 5 miles without feeling exhausted when I finished. It looked like I was going to enter my June training as scheduled, with plans to lose a few pounds to be at my recommended racing weight, making it easier to bike and run during the half Ironman.
While away in Washington D.C. for Digestive Disease Week in May, I felt like a true triathlete – and for one that suffers from IBD, a pretty strong one. Each day I was there I trained around the nation’s capital. It was not only beautiful but motivating for me. I was doing it! I was waking up early every morning and riding around a major city with ease. I had been weaving around the monuments and tourists and seeing all the sites without reaching a point of exhaustion. The video below is a time-lapse from my second ride around the city.
Then June came around and the bumps in the road became frequent. First my mild arthritis started to act up. There were days when I would get out of bed with achy joints and muscles that just didn’t want to do anything. Then my doctor wanted to have me begin to wean off Predisone from 10mg to 7.5mg. This has been the dose that I’ve started to see problems, having more pain and my rectal area becoming a problem. Of course, that’s what happened again, and I had enough pain that it kept me from having the motivation to get out and train. Below is a picture of the bleeding at times that I’m dealing with while I attempt to train.
Don’t get me wrong, I knew something like this was bound to happen. The question I have is how long with it last? As many IBD patients know these diseases aren’t a science. Dealing with them, physically and mentally, is an art and if you don’t play your treatment, rest, and other cards right, things can quickly spiral out of control. Right now, the mental battle with this question is much harder than the physical. After such a great start to the training, I’m having a tough time at a key part of preparing for the 70.3 miles. I should be ramping up my training and getting ready for my preparation races, but instead I’m slowing down.
So what do I do? Part of me says that I should take it slow, forget about the 70.3 mile distance this year and maybe take it easy. This could give my body more time to heal which would allow me to not have to deal with the bleeding and rectal pain at times. Then again, my doctors have told me that with the type of superficial problem I’m having, my level of activity won’t have much an effect on healing.
After hearing that, the other side of me reminded me how far I’ve come. Part of doing activities like a half Ironman is dealing with injuries and health problems. These are bumps in the road that many triathletes who are trying to overcome a chronic disease have to deal with. So I’ve been asking myself, “Is this a normal level of trials and tribulations, or am I pushing myself too much?” I look at a picture like the one below at the Washington Monument and feel so happy that I can even attempt to try to complete the 70.3 miles.
Only time will tell how this will play out, but what I do know is that this training has lead me to feeling better than I have in a long. It has taken my mind off of my Crohn’s disease so much and given me goals to hit. I don’t remember the last time I’ve been this motivated. Maybe it’s because something like this half Ironman is within reach and I know my health is on the right track but I’m afraid to look back now. Whether I will or won’t on this road to 70.3 miles is yet to be written, but whatever happens, I know it’ll be the right decision.
To make a donation to the 70.3 for IBD triathlon, please click the button below.
The IIF will be riding in the Five Boro Bike Tour for the second time in 2014. This ride is for all ability levels and doesn’t require a large amount of training. The 40+ mile ride goes through all five boroughs of New York City, by many landmarks, through Central Park and over many bridges in the area.
For more information on the Five Boro Bike Tour, please click here.
We will be riding again this year to raise IBD awareness, educate those about the diseases and of course to have a good time. The fundraising minimum will be $500 this year. For their efforts to raise IBD awareness, riders will receive an IIF jersey/shirt, IIF water bottle, lunch after the ride and more.
To sign up for the ride, please fill out the form below or click here. After filling out the form, you can begin to create your fundraising page at the link below. For tips on fundraising for the IIF, please click here.
If you are interested in riding or signing up for the ride, please join the Ride’s Facebook page as well. We will be posting updates there as the ride gets closer.
An IIF team member will contact you shortly after you complete the form below. We look forward to cycling with you in 2014!
The IIF is happy to announce Sarah Brocker as the winner of our second Intense Intestines Scholarship. Sarah is an amazing twenty year old woman, who has done everything she can to not let her Crohn’s disease keep her from earning her degree.
Sarah is currently on TPN therapy and bowel rest while she is taking classes at Hanover College. This means she spends all day battling her Crohn’s disease while not eating anything. Then at night hooks herself up to an IV to receive all of the nutrition her body needs directly into her bloodstream.
We believe that Sarah is an inspiring role model for other college students with Crohn’s disease or ulcerative colitis. The IIF knows that she will set an incredible example for other young adults in the inflammatory bowel disease and ostomy communities.
Below is the video submission Sarah sent to the Intense Intestines Foundation to complete her application. She discusses her life with Crohn’s disease, how she is determined to finish her degree and that she will Never Stay Quiet.
We are happy to have Sarah as part of the IIF family. In order to help other young adults with IBD and/or ostomies we need your help. Please consider a 100% tax deductible donation today.
Bob Baker is a true inspiration. He’s battled ulcerative colitis for years, lives with an ostomy and also is a cancer survivor.
Here is just a portion of his story, which he shared with the Intense Intestines Foundation for our Never Stay Quiet campaign.
Never Stay Quiet!
To help others with Crohn’s disease, ulcerative colitis and ostomies, please click the link below and make a contribution to the Intense Intestines Foundation which will allow us to continue our mission.
We were happy to have Sara Ringer of Inflamed and Untamed attend the 2nd Annual Climb for Crohn’s & Colitis this year. While she was in our neck of the woods, we were happy that she offered to share her IBD and J-pouch story with us for our Never Stay Quit video series.
Sara is a perfect example of our Never Stay Quiet motto, as she is an amazing advocate for the IBD community. Her work is tireless and Sara loves to help as many people as possible with Crohn’s disease and ulcerative colitis. Sara’s Youtube page has over 50 videos on various topics to help those with IBD.
In the video below Sara discusses her diagnosis, how she deals with her IBD, what the words Never Stay Quiet mean to her and more.
On May 5th a team of 4 riders and President of the IIF Brian Greenberg, rode 40 miles in the NYC Five Boro Bike Tour to raise awareness for Crohn’s disease, ulcerative colitis and ostomies.
The ride totaled 40 miles and went through the Bronx, Queens, Brooklyn, Staten Island and Manhattan. Riders got to cycle through Central Park, down the FDR Drive highway, over major bridges such as the Verrazano and by many more New York City attractions.
Our team of riders raised $1,000 to assist with IIF programs and help those with these diseases. The IIF can’t thank them enough for their efforts to help those with IBD and ostomies.
Cycling the Big Apple for IBD and Ostomy Awareness Video
May 18th was another great day for the IIF. We held our 2nd Annual Climb for Crohn’s & Colitis event at The Rock Club. This year was exciting for us as Sara Ringer of Infamed and Untamed flew to the New York City area to help the IIF raise IBD awareness for World IBD Day.
At the event we had more people with IBD attend this year. We were happy to see others show that it is possible to live a normal lifestyle at times with these diseases. It wasn’t easy as many of them were battling during the day, on medicines or even not eating at times in order to attend. The fact they didn’t let their IBD keep them from attending is an amazing accomplishment.
The Climb for Crohn’s & Colitis this year raised almost $2,500 to help those with IBD and ostomies. IIF programs such as the Intense Intestines Scholarship continue to grow due to support from events such as these. As the IIF continues to grow we’ll always look for ways to assist those with these diseases.
2nd Annual Climb for Crohn’s & Colitis World IBD Day Video
We’d like to especially thank The Rock Club for allowing us to use their great facility, Shawn Kapitan of DTE Photography for documenting the event, Sara Ringer of Inflamed and Untamed for helping us raise IBD awareness, all of those that donated items for the raffle and everyone else that helped us make the event a great success again this year.
All of us on the IIF team are already looking forward to the 3rd Annual Climb for Crohn’s & Colitis next year. We have some great ideas which are going to make the event even better than the last two. Mark your calendars for May 17th next year now and we look forward to seeing you at The Rock Club for another great event.
Hello I.I.F. Supporters,
As many of you know, I suffer from severe Crohn’s disease and have an ileostomy. The journey of my life so far has not been the easiest, but I believe in living life to the fullest and not letting my disease get in the way of that goal. Now, I want to impart what I have learned about overcoming the obstacles in my path to live as normal and active a life as possible to others with IBD conditions.
I’ll be hiking/climbing the 46 High Peaks in the Adirondacks with a goal date to finish the highest peak on October 6th, World Ostomy Day. Completing the 46 mountains isn’t an easy task as the terrain on many of them is very challenging. Add to that my Crohn’s and ostomy and some would say it’s a crazy feat, but it’s one I’m ready to conquer. My hope is to show others that with the right planning and preparation, a person living with an IBD or an ostomy can do anything.
Please help me reach my goal of raising $4,600 for the Intense Intestines Foundation to help raise awareness andcreate the Intense Intestines Scholarship. All proceeds will go towards helping others with Crohn’s disease, ulcerative colitis and ostomies. If you contribute $100 or more, I’ll dedicate a summited peak in your name as I complete all 46 mountains for each $100.
Thank you for your support and help in this exciting project to help others with IBD and ostomies know that anything can be accomplished and to Never Stay Quiet.
Brian Phillip Greenberg
Currently Completed Peaks: Porter Mountain (4059′), Cascade Mountain (4098′), Esther Mountain (4239′), Whiteface Mountain (4865′).
No peaks have been dedicated yet.
Leave Brian a comment:
The Intense Intestines Foundation is always looking for new ways to reach as many people as possible and raise awareness for Crohn’s disease, ulcerative colitis and ostomies. A couple of our main goals are to show people that they can live a normal life with the right planning and preparation, as well as to open up about their disease and know that it’s okay to discuss everything they’re going through.
This is why we’ve created the Never Stay Quiet campaign for IBD and ostomy awareness. The main goals of this campaign is to show others with IBD and/or ostomies that it’s okay to discuss their condition with others and raise awareness themselves, as well as open up so they can feel better about themselves. Another goal of the campaign is to allow those who don’t know much about an IBD or ostomy, that even though patients might suffer from many symptoms we can overcome the diseases and live a normal life.
We’ll be shooting videos with many different people of different genders, ages, ethnicities, diseases and more for the Never Stay Quiet campaign. This way everyone with Crohn’s disease, ulcerative colitis and/or ostomies will be able to find a video with a story they can connect too.
Here is our first video from IIF follower Marisa, who was nice enough to share her story. The words Never Stay Quiet have a very important place in her life.
For more information on the IIF’s Never Stay Quiet campaign, please visit our campaign page here.
We look forward to helping as many people as possible with this project and raise more awareness for Crohn’s, colitis and ostomies.
Never Stay Quiet!
In recent days we’ve seen many posts about the new Escape the Stall campaign by the Crohn’s & Colitis Foundation of America. Social media sites have been buzzing about the campaign and many people have been sharing their feelings about the pictures the CCFA has released to raise IBD awareness.
Influential people in the IBD community like Jessica Grossman of Uncover Ostomy have written about the campaign (Click here for Jessica’s post) and Sara Ringer of Inflamed and Untamed wrote about it as well (Click here for Sara’s post). To many people to count have commented on these two posts and other posts on various Facebook pages or Twitter accounts, all sharing different and varying thoughts. Most people in the IBD community seem to be viewing the campaign in a negative way.
We made this short video with the pictures from the Escape the Stall campaign.
These pictures have been seen in movie theaters, magazines, newspapers and other areas to raise IBD awareness. We’d like to know what you think and hear your thoughts. Please feel free to leave a comment and start a discussion on the topic here or on our Youtube page. It might be good feedback for the CCFA.
Never Stay Quiet!
Sometimes there are just things that aren’t right in society. Some of them we can’t do anything about, others though we can have a voice and make changes. The other day I was at a local sports bar in Norwalk, CT and when I went to the bathroom there was no door on the stall. As an Inflammatory bowel disease patient for the last 20 years and one who lives with an ostomy now, I was amazed to see this. How could an established sports bar like this one not have something as simple as a door on their stall?
I took a moment to think about while I was there. Being someone who is extremely comfortable with my ostomy I had used it. My thought process was that whoever might walk into the bathroom right now will just get a lesson in ostomy awareness. It might just be another chance for me to bring awareness to the cause.
As I was sitting there doing my thing, I began to think about all the other people in a similar situation as me or how about just regular people who might want a little privacy when they use the bathroom. As a Crohn’s patient I thought about all my IBD friends who wouldn’t be comfortable with this. What about those few that have an ostomy who don’t wish for others to see it, how are they supposed to handle this situation when they need to use the bathroom?
This is something that any person might not know about until it’s to late. They would get to the restaurant, eat a good meal, all of a sudden have the urge to go, get to the bathroom and have no choice. Someone with Crohn’s disease or ulcerative colitis wouldn’t have a choice. When the urge hits, you have to go and many times you have to go at that moment. Sometimes without even enough time to get a friend to watch the door for you if you aren’t comfortable.
Needless to say I’m writing a letter to the owner of the restaurant. This situation is something that shouldn’t be a situation at all. How can a bar not have a door on their stall? I understand that if it were a straight bar or club trying to be trendy, or maybe that will deter people from making a mess, doing drugs, or using the bathroom in any other way that it wasn’t meant for. But what about the rest of us, the 99% of patrons that just might need to go to the bathroom and would like a little privacy.
I will let you know the outcome of writing management and the owner. This is a perfect example of how we should…
Never Stay Quiet!
Many activities can look scary when having an ostomy. Some of them are and precautions have to be made. You should only partake in many activities if they are in a safe environment. Skiing is a sport that some ostomates stay away from. There are so many factors and variables that go into a sport like skiing or snowboarding that it can be intimidating
These winter sports that so many love can be done with an ostomy and enjoyed. The most important thing to remember is that they must be done when your body is strong. If you’re uncomfortable with your body, then an activity with as much motion as skiing or snowboarding is hard. When you body is strong, you can begin to think about going for a trip.
When planning your trip there are some factors that you must think about. Here are a few.
1) Conditions: You don’t want to ski or ride when the conditions are tough. If the mountain is full of ice and the chances are higher than normal for a fall or accident, then it’s not worth the risk.
2) Weather: If you aren’t going to be comfortable on the mountain then you won’t perform well. This will raise the chances of something happening and possibly falling. If the weather is going to be 10 degrees with 40 mph winds, STAY AT HOME.
3) Friends: Unless you’re an expert and are at a mountain you know, you should be skiing with friends who know you. Being with people who know your situation will make you more confident and allow you to ski/ride better.
4) Stay Hydrated: When performing heavy activity in cold weather your body has to work hard. You might not sweat but your body is still losing moisture. Wear a hydration system and stay away from beverages that will dehydrate you.
5) Use Common Sense: No one knows your body better than you, so make a smart decision on if skiing or riding at this time is correct. If you have any doubts, then it’s not the right time. Wait until you know the timing is right.
Performing certain activities with an ostomy can be scary, but most if not all activities can be done with the right planning and preparation Founder of the IIF Brian Greenberg went skiing last year. Here are some thoughts Brian had on his first trip since surgery.
“I waited until the time was right. My first winter with an ostomy was great, but I was nervous. I spent the winter snowshoeing which still allowed me to enjoy being outside. Last year the season on the East Coast was not the best. The conditions were icy and even though I was strong, I didn’t want to risk falling on my stoma. Later in the season the mountain began to get snow, a lot of snow. As soon as the conditions were going to be soft, I began to make calls and plan a trip. I was lucky as a friend has a house I could stay at. This made me even more comfortable since I knew I had all the comforts of home at the end of the day. The two days were great, I skied most of the time in powder and never had a worry in the world. I fell twice and it was like nothing happened. The trip gave me more confidence that my body was getting stronger and I could do what I loved again”
This shows you that when the timing is right with your body, you still might have to wait till other factors are right too. Brian was smart and his patience paid off, which allowed him to ski without worrying about anything happening. Take your time and when it’s right to go skiing o riding for the first time, you’ll know it.
Never Stay Quiet!
Now that we have officially begun 2013, all of us at the IIF wanted to take a quick look back at our first full year of operation. It was a year in which we all learned a lot, and all of us are looking forward to applying what we learned and helping even more IBD and ostomy patients in 2013.
In our first year of raising Crohn’s disease, ulcerative colitis and ostomy awareness we were able to fundraise over $10,000 in order start the IIF, create the resources needed and begin to create the Intense Intestines Scholarship, to help young adults reach their higher education goals.
We held events throughout the year which included:
- The Climb for Crohn’s & Colitis, climbing event (World IBD Day, May 19th)
- The Comedy for Crohn’s & Colitis Event, featuring the Chris and Paul Show (July 28th)
- Bring Your Baggage, World Ostomy Day Event (October 6th)
- IIF Bike Ride From New York City to Boston (October 26th-28th)
- Strike Down Crohn’s & Colitis, bowling event (Crohn’s & Colitis Awareness Week, Dec 2nd)
All of these events led us to meet incredible people and we were able to reach new IIF followers who weren’t even aware of IBD or ostomies. In 2013 we have even more planned in order to raise awareness with events like the ones above and more. Including a great Never Stay Quiet campaign to raise even more awareness for Crohn’s disease, ulcerative colitis and ostomies.
Here are some videos from 2012
During 2012, we didn’t just hold events either. We were given incredible opportunities to be featured in magazines like the back cover of Crohn’s Advocate, the The City That Works feature and Brian Greenberg appeared on New Channel 12 CT for a segment called 12 on Health to raise IBD awareness.
We’re ready for the start of 2013 and are excited to say that we will soon be fully 501(c)(3) certified by the Internal Revenue Service. This will allow us to run as fully tax exempt nonprofit and will allow our contributors to get the write offs which they deserve for helping us in our mission of helping others.
As the IIF continues to grow, we’ll be sure to continue to bring you more good news. We can’t wait to see where 2013 will take all of us and what will be in store. All of us are passionate and can’t wait to carry out our mission for another year. We get incredible satisfaction by helping others with Crohn’s disease, ulcerative colitis and ostomies. Nothing will stop us from doing everything we can to make the lives of others with these diseases better.
Never Stay Quiet!
In this video Intense Intestines Foundation Founder & President, Brian Phillip Greenberg overcomes his Crohn’s disease and ostomy to train in boxing and kickboxing with his trainer. It’s important to only train like this with someone who knows about your health conditions.
You can overcome your IBD and ostomy as well. We all just have to put in the effort and try. Is today the day you will start overcoming your IBD or ostomy?
Never Stay Quiet!
Anyone can do something if they put their mind to it. Sometimes when a person has an IBD or ostomy they just have to try a little harder. If they put the effort into changing their life and living a healthy lifestyle, it can make a huge difference in their quality of life.
Brian has overcome more then 25 surgeries and many flares with his Crohn’s disease. Now he lives with an ostomy and is reclaiming his life. Here Brian shows that even with Crohn’s disease and an ostomy you can exercise just like a healthy person. He takes that extra step to make sure that he lives as normal a life as possible even after everything he’s been through.
Is today the day that you take your first step and start to overcome your IBD or ostomy?
Never Stay Quiet